Wednesday, July 28, 2010


Maybe you read Nikki Reeds blog or maybe you found this some other way. In any case thank you for taking the time and an extra thanks if you have donated to the cause!! The above Paypal button is directly linked to the Choroideremia Research Foundation. I am trying to raise at least $100,000 for sponsorship on my races. Please donate what you can and please let your family and friends know about what I'm doing and about Choroideremia. Are YOU running any marathons or involved in a situation where you would be able to raise money for charity? Well please consider the Choroideremia Research Foundation. We thank you so much for your support and good thoughts.

All the best.



  1. EJ, it's Beth (Greg's wife)-- I found your blog through facebook. So great to get to follow your efforts this way. Thanks for keeping us all updated and for reminding us to keep supporting this important research. Very best!

  2. Hello EJ! I found your blog at Nikki Reed's blog. I'm a huge twilight fan from portugal- madeira island,and i'm 16 years old. when i get into her blog i thougth i would fing posts just about twilight and her films, intead of that, i found your story, something mutch more deep, something that make me cry. your story touched me very mutch and i feel so bad cause i can't do anything to help you! i feel so useless that it hurts! i don't have any money to give,and i'm so far that i can't do anything to help you.. so, i just wanted to tell you, that i've posted your story on my blog, and in my facebook, and in my twitter... i hope someone can help you... i wish i could do more, if i could, i will do, i swear tou you! I hope everything is well with you, and pray for you to continue seeing the beauties of this world much longer, and when you are no longer able to observe them, to continue to remind them, because there's nothing better than the good memories!
    take care! :)

    Paola Isabella

  3. thank you paola!!! you did a lot!! i really appreciate it :)